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Residents' Rights
For People in Long Term Care Facilities
 
As a long term care facility resident in Illinois, you are guaranteed certain rights, protections and privileges according to State and Federal law. It is important for both families and residents to know that residents have these rights and to know what those rights are.

       
Right to safety and good care

Your facility must provide services to keep your physical and mental health, and sense of satisfaction with yourself, at their highest practical level.

Your facility must be clean and stay at a healthy temperature.

You must not be abused by anyone-physically, verbally, mentally or sexually.

Your facility must not physically restrain you unless there is no other way to keep you safe and you agree to the restraint.

You may be given medicine intended to change your mood or how you think only with YOUR permission and only as part of an overall plan designed to change or remove the problems for which the medicines are given.

Your rights to participate in your own care
Your facility must develop a written care plan, which states all the services your facility will provide to you and everything you are expected to do. Your facility must make reasonable arrangements to meet your needs and choices.
You may go to the care plan conference where your care plan is decided. You may choose to have family, friends or a representative participate in the care plan conference.
You have the right to choose your own doctor. You will have to pay the doctor yourself unless Medicare, your insurance plan or Medicaid will pay the doctor bill.
Your family must tell you the name and specialty of each doctor responsible for your care, and how to contact that doctor.
You have the right to be in charge of taking your own medicine if your care planning team and your doctor say that you are able to do so.
You have the right to refuse any medical treatment. If you refuse a treatment, your facility must tell you what may happen because of your refusal and tell you of other possible treatments.
You have the right to complete information about your medical condition and treatment in a language that you can understand.
You have the right to make a Living Will or a Durable Power of Attorney for Health Care, so the facility will know your wishes if you can no longer speak for yourself.
You may refuse to participate in any experimental treatment on you or allow anyone to use information about you for research without your permission.
Your facility must allow you to see your medical records within 24 hours of your request. You may purchase a copy of part or all of your record at a reasonable copy fee with two working days advance notice.
Your facility may not require you to work.
You have the right to move out of your facility after you give the administrator, nurse, or doctor written notice that you plan to move.
Your right to privacy
Your medical and personal care are private. Facility staff must respect your privacy when you are being examined or given care.
Facility staff must knock before entering your room.
Your facility may not give information about you or your care to unauthorized persons without your permission, unless you are being transferred to a hospital or to another health care facility.
You may ask any visitor to leave your personal living area at any time.
You have the right to make and receive phone calls in private.
Your facility must deliver your mail to you promptly, and promptly send mail out for you. Your facility may not open your mail.
If you are married, you and your husband or wife have the right to share a room unless no room is available or your doctor has said you cannot share a room for medical reasons.
Your rights regarding your money
You have the right to manage your own money. Your facility may not require you to let them manage your money or be your Social Security representative payee.
If you ask your facility to manage your personal money for you, it must do so (Medicare or Medicaid certified facilities only).
If your facility manages your money, it may spend your money only with your permission.
If your facility manages your money, it must give you an itemized written statement at least once every three months of all the money put into your account and all of the money taken out of your account.
If your facility manages your money, it must put your money in a bank account that earns interest for you if: you live in a Medicaid facility and have over $50 or you live in a licensed only facility and have over $100.
If you die, within 30 days of your death your facility must give your family, or whoever is in charge of distributing your property, a final accounting of all money left in any account which the facility manages for you.
You may see your financial record at any time.
Your personal property rights
You have the right to keep and wear your own appropriate clothing.
You may keep and use your own property, including some furniture if there is enough space, unless this interferes with the health and safety of other residents.
You have the right to expect your facility to have a safe place where you can keep small valuables which you can get to daily.
Your facility must try to keep your property from being lost or stolen. If your property is missing, the facility must try to find it.
Your rights in paying for your care,
and getting Medicare and Medicaid
If you are paying for some or all of your care at the facility, you must be given a contract that states what services are provided by the facility and how much they cost. The contract must say what expenses are not part of the regular rate.
Your facility must not require anyone else to sing an agreement saying that they will pay your bill if you cannot pay it yourself. The only one who can be required to pay your bill for you is a court appointed guardian or someone else who is handling your money for you.
Your facility must give you information about how to apply for Medicaid and Medicare and rules about "spousal impoverishment." Spousal impoverishment rules allow you to give money and property to your husband or wife and still be eligible for Medicaid.
You have the right to apply for Medicaid or Medicare to help pay for your care. Your facility must not make you promise not to apply for Medicare of Medicaid.
If you get Medicaid, the facility may not make you pay for anything that Medicaid pays for. The facility must give you a written list of what items and services Medicaid pays for, and for items and services for which you could be charged.
Your right to stay in your facility
You have the right to be told in advance if your room or roommate is being changed (Medicare or Medicaid certified facilities only).
You have the right to keep living in your facility, unless your facility forces you to move because you are dangerous to yourself and others, for medical reasons, you have not paid or are late paying your bill, or your facility closes.
You can not be forced to leave your facility because you are applying for Medicaid or you are on Medicaid and a Medicaid bed is available. It is important to ask the facility how many Medicaid beds it has.
If your facility wants to force you to move, you must be given a written notice 21 days ( State licensed facilities) or 30 days (Medicaid or Medicare certified facilities) before the day it wants you to move. The notice must tell you why your facility wants you to move and how you can appeal to the Illinois Department of Public Health. Your facility must give you the forms you need to appeal, and a stamped, addressed envelope for you to use to mail your appeal to the Department of Public Health.
You have a right to ask the Long Term Care Ombudsman for help in appealing your facility's forcing you to move. Call 1-800-252-8966 (voice and TTY).
If you appeal to the Department of Public Health, usually your facility cannot make you leave until the appeal is decided.
Before your facility can transfer or discharge you, it must provide preparation and orientation to be sure that your discharge is safe.
You must be allowed to return to your facility after you are hospitalized, unless your facility gives you written notice as described above.
If you get Medicaid and are hospitalized for ten or fewer days, your facility must let you return when you leave the hospital. If you are hospitalized for more than ten days, your facility must let you return if it has a bed available and you still need that kind of care. If your facility is full, you must be allowed to have the first available semiprivate room, if you still need that kind of care.
Your right as a citizen and a facility resident
Your facility must let you see reports of all inspections by the Illinois Department of Health, from the last five years and the most recent survey of your facility along with any plan that your facility gave to the surveyors saying how your facility plans to correct the problem.
You do not loose your rights as a citizen of Illinois and the United States because you live in a long-term care facility.
If a court of law has appointed a legal guardian for you, your guardian may exercise your rights for you.
If you have named an agent under a Durable Power of Attorney for Health Care, your agent may exercise your rights for you.
You have freedom of religion. At your request, the facility must make arrangements for you to attend religious services of your choice as long as you agree to pay any cost. The facility may not force you to follow any religious beliefs or practices and cannot require you to attend any religious services.
You have the right to vote for the candidate of your choice.
You have the right to participate in social and community activities that do not interfere with the rights of other residents.
You have the right to participate with other residents in the resident advisory council. Your facility must respond to concerns raised by the council.
You have the right to meet the Long Term Care Ombudsman, community organizations, social service groups, legal advocates, and members of the general public who come to your facility. Representatives of these groups may come to your facility to give you services, tell you about your rights, or help you assert your rights.
You have the right to present grievances to your facility and to get a prompt response. Your facility may not threaten or punish you in any way for asserting your rights or presenting grievances.

You have the right to present grievances to outside organizations and advocates including the following agencies:

  • Long Term Care Ombudsman, 1-800-252-8966 (voice and TTY);
  • Equip for Equality, Inc., for persons with mental illness or developmental disabilities, 1-800-537-2632 (voice and TTY);
  • Illinois Department of Public Health, 1-800-252-4343 or 1-800-526-0844 (voice and TTY).

This document is also available in Portable Document Format.
Residents' Rights.pdf
To view or print PDF files, you will need the Adobe® Acrobat® Reader, available FREE from Adobe's web site.

TLC in LTC
620 North Walnut Street
Springfield, IL 62702
Phone: (217) 523-8488
Toll Free: (800) 728-4782
Fax: (217) 523-8493
E-mail:
email@tlcinltc.org

 
 
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