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Family
Councils
Providing Support For Families, Creating
Solutions Through Group Strength
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A family
council is an independent (self-led
and self-determining) group of families and friends of residents
that together protect and improve the quality of life for
residents and provide families with a voice in decisions that
affect their loved ones.
A family council may select
whatever name it chooses. It can be called Family Support
Group, Friends of Residents, or Quality of Life Advocates,
etc. The name is not important. What
is imperative
for family councils to function effectively
and independently
is that facility staff not be present at meetings or influence
the direction of the group.
This does
not imply that the family council does not want to work with
the facility. Effective councils do work with facilities when
they are open to dialogue. However, staff not attending meetings
gives families the opportunity to voice concerns without fear,
to solicit the help of the ombudsman for complete information,
and to solicit legal and medical assistance if necessary before
meeting with the facility staff.
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Independence
Independence is a defining characteristic
of a family council. A group that is led by facility staff
does not constitute a family council.
Support
Individuals, families, and residents often
find the emotional support that the group provides
is the most rewarding benefit of belonging to a family council.
Strength
Family councils can create solutions by
being educated about residents' rights and by providing a
united voice through group
strength.
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The Benefits
Family Councils Offer
- Support and empowerment for
families—Sharing with others who are having similar feelings
can help family members cope. Ongoing mutual support--strength
drawn from shared experiences.
- Education and information—To
understand residents’ rights and to become knowledgeable about
best pioneer nursing home practices, facility operations, policy,
rules, and the health conditions, such as Alzheimer's disease,
affecting the residents.
- Discussion and action on concerns
and complaints—A “united voice” to address issues as a “united
effort.” A family council is a group in which the families can
be the catalyst for positive actions to improve care. A council
can support and protect residents who do not have concerned families
or friends.
- Communication with the facility
staff and home— Councils allow facility staff to deal directly
with family concerns and ideas. The facility may be able to use
the family council as a sounding board for new ideas. Councils
also help residents express meaningful appreciation for staff,
as well as an opportunity for staff to know families and residents
better.
- Services and activities for
residents—Family and community involvement can enrich the
lives of residents and keep them connected to the community outside
of the facility. Council sponsored activities and events to supplement
the activity program.
- Legislative Action—To support
a united consumer action for quality care and a life of dignity
for long-term care residents.
Find out more about...
The
Right to Organize
Families
are guaranteed the right to form and hold regular meetings of a
family council in the 1987 Nursing Home Reform Law.
Federally certified facilities must promote
and support family councils and non certified facilities
should want to support family councils by:
- Providing private space within
the facility for a family council to meet privately;
- Designating a staff liaison to
provide assistance when needed. Facility staff cannot attend
meetings unless invited; and
- Listening and responding to the
grievances and recommendations of residents and families concerning
resident care and life in the facility.
Find out
more about...
Getting
Started on a Family Council
Information and resources on beginning a family council in your
facility, or making your existing family council more effective.
Find out
more about...
Regional
Ombudsmen
Find out
more about...
Organization
and Structure of family councils
The organization and structure of
a family council is important. A strong council structure is necessary
for a successful and lasting group.
Find out
more about...
Barriers
Facing Family Councils
Find out
more about...
Concern
and Complaint Resolution
Find out
more about...
Outreach
Find out
more about...
My
Family Council
Find out
more about...
For a list of Related Family Council Sites, click
here.
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What Makes
a Family Council Successful
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| Meetings
planned and led by members (family and friends). |
| Sound organization including purposes,
bylaws, agenda, minutes, and officers elected by families and
friends. |
| Meetings
conducted in such a way that members feel free to express their
concerns without fear. |
| Realistic, effective efforts to
resolve concerns. This often hinges on a council’s decision
to focus on the concerns of the group rather than on individual
problems. |
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Each member is educated on steps
to being one’s own advocate.
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| Commitment and involvement of
staff and administration.
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TLC in LTC
620 North Walnut Street
Springfield, IL 62702
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Phone: (217)
523-84819
Toll Free: (800) 842-8538
Fax: (217) 523-8493
E-mail: email@tlcinltc.org
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