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Confronting the Fear of Retaliation |
Concern and Complaint Resolution
Outreach | My Family Council | Why Facilities Want Family Councils

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Family Councils
Providing Support For Families, Creating Solutions Through Group Strength

A family council is an independent (self-led and self-determining) group of families and friends of residents that together protect and improve the quality of life for residents and provide families with a voice in decisions that affect their loved ones.

A family council may select whatever name it chooses. It can be called Family Support Group, Friends of Residents, or Quality of Life Advocates, etc. The name is not important. What is imperative for family councils to function effectively and independently is that facility staff not be present at meetings or influence the direction of the group.

This does not imply that the family council does not want to work with the facility. Effective councils do work with facilities when they are open to dialogue. However, staff not attending meetings gives families the opportunity to voice concerns without fear, to solicit the help of the ombudsman for complete information, and to solicit legal and medical assistance if necessary before meeting with the facility staff.

Independence
Independence is a defining characteristic of a family council. A group that is led by facility staff does not constitute a family council.

Support
Individuals, families, and residents often find the emotional support that the group provides is the most rewarding benefit of belonging to a family council.


Strength
Family councils can create solutions by being educated about residents' rights and by providing a united voice through group strength.

 
 

The Benefits Family Councils Offer

  • Support and empowerment for families—Sharing with others who are having similar feelings can help family members cope. Ongoing mutual support--strength drawn from shared experiences.
  • Education and information—To understand residents’ rights and to become knowledgeable about best pioneer nursing home practices, facility operations, policy, rules, and the health conditions, such as Alzheimer's disease, affecting the residents.
  • Discussion and action on concerns and complaints—A “united voice” to address issues as a “united effort.” A family council is a group in which the families can be the catalyst for positive actions to improve care. A council can support and protect residents who do not have concerned families or friends.
  • Communication with the facility staff and home— Councils allow facility staff to deal directly with family concerns and ideas. The facility may be able to use the family council as a sounding board for new ideas. Councils also help residents express meaningful appreciation for staff, as well as an opportunity for staff to know families and residents better.
  • Services and activities for residents—Family and community involvement can enrich the lives of residents and keep them connected to the community outside of the facility. Council sponsored activities and events to supplement the activity program.
  • Legislative Action—To support a united consumer action for quality care and a life of dignity for long-term care residents.
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The benefits of a family council


The Right to Organize

Families are guaranteed the right to form and hold regular meetings of a family council in the 1987 Nursing Home Reform Law. Federally certified facilities must promote and support family councils and non certified facilities should want to support family councils by:

  • Providing private space within the facility for a family council to meet privately;
  • Designating a staff liaison to provide assistance when needed. Facility staff cannot attend meetings unless invited; and
  • Listening and responding to the grievances and recommendations of residents and families concerning resident care and life in the facility.
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Rights of Family Councils in Nursing Homes.

Getting Started on a Family Council

Information and resources on beginning a family council in your facility, or making your existing family council more effective.

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How One Family Member Can Be a Catalyst for Starting a Family Council
Family Council Talking Points
What A Family Council Is Not

Regional Ombudsmen

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How the Ombudsman Program Supports Family Councils
Find the ombudsman in your area

Organization and Structure of family councils

The organization and structure of a family council is important. A strong council structure is necessary for a successful and lasting group.

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How a Family Council is Structured
Effective Leadership in a Family Council
The Rules Governing a Family Council (Bylaws)

Barriers Facing Family Councils

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The barriers and challenges family councils face.

Concern and Complaint Resolution

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Confronting the Fear Of Retaliation

Outreach

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Family Education and Outreach

My Family Council

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Learn more about local family councils, and what they are doing
Tell us about your experiences or give advice to fellow family members
Tell us how you solved issues and concerns in your facility

For a list of Related Family Council Sites, click here.


What Makes a Family Council Successful
 
Meetings planned and led by members (family and friends).
Sound organization including purposes, bylaws, agenda, minutes, and officers elected by families and friends.
Meetings conducted in such a way that members feel free to express their concerns without fear.
Realistic, effective efforts to resolve concerns. This often hinges on a council’s decision to focus on the concerns of the group rather than on individual problems.

Each member is educated on steps to being one’s own advocate.

Commitment and involvement of staff and administration.

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